Everyone has a story, and mine is written in doctor’s visits, good days, bad days, and a whole lot of resilience. Living with multiple chronic conditions has changed how I see myself, how I move through the world, and how I connect with others. For a long time, I kept most of this private. But now, I am ready to share my journey—not just for me, but for anyone who has felt unseen in their health struggles.
Living with illnesses like Dercum’s Disease, Lipedema, Hypermobile Ehlers-Danlos Syndrome, Mast Cell Activation Syndrome, etc. isn’t easy. Every day comes with its own challenges, whether it’s managing pain, juggling medications, or simply finding enough energy to do every day things.
I decided to start this blog because I know I’m not alone. Millions of people live with invisible illnesses: chronic pain conditions, mental health struggles, and diabetes, to name a few. Unfortunately, the common thread is often the shared experience of feeling misunderstood and dismissed by the medical community, friends and family alike. I plan to share:
- Personal stories from my daily life
- Practical tips that help me cope
- Honest reflections about the emotional ups and downs
- Resources that might help others on their journey
But this blog isn’t just about illness–it’s about trying to live fully with illness. It’s about finding joy in small moments and small victories, learning to advocate for yourself(because you have inherent worth), and connecting with the people who “get it.”
Whether you are a fellow spoonie, a caregiver, or just curious, welcome. Let’s walk this path together.
Feel free to comment bellow with any topics you would like to here me cover, or share your own story.
And check out my video at https://youtube.com/shorts/MR2Ii1Hodok?si=wYC6qXSCEN7bQIzn
